MD doesn't get the pulmozyme anymore but we did add a new antibiotic. She has been sleeping and eating really well. Her new favorite food is prune puree. We went to the monthly CF support group and met some other parents dealing with CF. There is a CF run/walk soon that Ann and I are going to try and participate in. I'm trying to fill in some of the holes from Ann's blog, I think that's good for now.
This girl!
6 years ago
So fun! Sorry it was bit cold but the heat will come!
ReplyDeleteCan't wait to actually enjoy the cold water with you!
ReplyDeleteLove the bathing beauties!
ReplyDeleteso sweet, did she like the water? You guys look great. Keep on loving strongly. Hugs, mom
ReplyDelete